July 18, 2016

Child Therapy: Corpus Callosum Disorders

Lumiere Children’s Therapy attended the 2016 Disorders of Corpus Callosum Conference this past weekend. We learned quality information about corpus callosum disorders, current research, and various therapy techniques. According to NODCC, 1 in 3,000 people are affected by a disorder of the corpus callosum. The corpus callosum is the area of the brain that connects the two hemispheres. It allows communication between the two hemispheres in order to coordinate movement or understand complex information.

What are Corpus Callosum Disorders?

There are four types Corpus Callosum disorders:

  • Complete Agenesis of the Corpus Callosum (ACC) occurs when the corpus callosum is completely absent.
  • Partial Agenesis occurs when the corpus callosum begins to develop, but something interferes to stop the development.
  • Hypoplasia of the Corpus Callosum occurs when the Corpus Callosum has developed, but is extremely thin.
  • Dysgenesis refers to an abnormal development of the Corpus Callosum.

Each of these disorders may only be diagnosed through a brain scan.

What are the causes?

The causes of Corpus Callosum Disorders are usually unknown, but can be inherited.  Complications during pregnancy may also attribute to the cause of these disorders. If a mother experiences prenatal infections/viruses, cysts, and/or toxic metabolic conditions during the 5th to 16th week of pregnancy, the development of the corpus callosum may be disrupted.

What are the symptoms?

Depending on the type of Corpus Callosum Disorder, symptoms may vary from mild to severe. In most cases, the disorder is discovered within the first two years of life. The most common early onset symptom is epileptic seizures. Other symptoms may include feeding problems or a delay in independent head holding. Children may experience delays in developmental milestones such as walking, talking, and/or reading. Activities that require coordination of the right and left side of the body may be challenging (swimming, bike riding, tying shoes, etc…) as well. Social interactions will increasingly become more difficult as a child ages. Jokes and metaphors will be hard to comprehend. As school progresses, children may fall behind in problem solving, complex reasoning, and creativity. There are mild cases of Corpus Callosum Disorders that do not express symptoms until later in life, which are usually diagnosed by seizures, repetitive speech, or headaches.

Is there treatment available?

Since Corpus Callosum Disorders are not an illness or disease, treatment does not exist. Researchers are discovering new strategies and therapy techniques to help cope with life’s challenges. Many doctors recommend speech, physical, and occupational therapy. For a consultation with one of our therapist at Lumiere Children’s Therapy, call 312-242-1665.



“Agenesis of Corpus Callosum.” NORD National Organization for Rare Disorders Agenesis of Corpus Callosum. National Organization for Rare Diseases, n.d. Web. 13 July 2016.

“Corpus Callosum Disorders.” National Organization for Disorders of the Corpus Callosum. N.p., n.d. Web. 13 July 2016.

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